Cape Cod ILD Support Group

Due to the novel coronavirus/COVID-19 outbreak, as of March 16, 2020, and until further notice, all support group meetings will be held online only. Please go our VIRTUAL MEETINGS page to join the meetings.

Our Cape Cod Support Group meetings are designed to offer support in daily life with interstitial lung disease and pulmonary fibrosis, and to promote community ties. They are tailored to the unique needs of Cape Cod patients and caregivers. 

We will be usually meeting on the last Thursday of each month, from 10:30am to 12:30pm, unless otherwise noted, and on the 1st Thursday of each month, from 12:30pm to 2:30pm (starting in June 2019). Both meetings will be held at the CapeSpace in Hyannis, MA. (Any exceptional changes are noted in the schedule below.)

The last Thursday meetings will feature speakers on a broad range of current topics including diagnosis, clinical developments over the past year, FDA approved therapies, and current and future research. We will also help identify clinical resources, including information about pulmonary rehabilitation, smoking cessation, oxygen use, dietary and stress management, and palliative care.

The 1st Thursday meetings will allow participants to connect via video conferencing to the Boston PF Support Group meeting at MGH. 

Parking is available free on site. 

Additionally, we will organize quarterly Cape Cod friends and family weekend gatherings.

SCHEDULE  

3/27/2020       10:00am – 11:00am
Maintaining Physical Health and Mental Wellbeing
Lisa Corneau, RRT, CNSF

2/27/2020       10:30am – 12:30pm
Benefits of Mindfulness Practice When Living With Life-Challenging Illness
Kristyn Willis, LICSW

1/30/2020       10:30am – 12:30pm
Genetics of Familial ILD
Katharine Black, MD

12/12/2019     10:30am – 12:30pm
More on Home Oxygen
Karla Schlichtmann, RRT

11/22/2019     10:30am - 12:30pm
ILD Collaborative: Vision, Roadmap, and Community Engagement
Aliaa Barakat, PhD

10/31/2019     12:00am – 2:00pm
Getting The Most Out Of Your IPF Management Plan
Barbara Schultz, RRT, RPFT

9/27/2019     11:00am – 1:00pm
Oxygen! Do I need it? Should I use it?
Karla Schlichtmann, RRT

8/29/2019     11:00am – 1:00pm
IPF and You
Mary LeRoy Sullivan, NP

7/25/2019     11:00am – 1:00pm
The Role of Pulmonary Rehabilitation in Interstitial Lung Disease
Barry Barrows, MD

6/27/2019     11:00am – 1:00pm
Taking An Active Role in your Disease Management
Barbara Schultz, RRT, RPFT 

5/30/2019     11:00am – 1:00pm
Living Well with Idiopathic Pulmonary Fibrosis
Joseph Zibrak, MD